Save Skin Cap
All the information regarding the SKIN CAP controversy
Originally, I was diagnosed with Psoriasis. After about two years, my dermatologists changed it to Pityriasis Ruba Polaris (PRP). Similar to Psoriasis, harder to get rid of. I too have tried countless ointments, tars and lotions. The effectiveness of these products were decreasing. My doctor suggested Tegison. I was on and off this medication for one year. I have seen better looking chemotherapy patients. If you want proof you can look at my passport. I can't imagine Skin Cap being anymore harmful to my body than that.
I was at a point where I would try anything to get better. I told my parents that I would go to a witch doctor if I thought it would help. Family funtions were becoming more and more uncomfortable, feeling the awkward stares explaining to my neices why I had sugar in my hair.
Through a strange bit of luck, I came across the miracle drug known as Skin Cap. This summer was amazing. I vaguely remember feeling so normal, it had been years. Not only did I feel normal, but I felt healthy. I felt stronger, sharper and attractive. I hadn't felt attractive in a long time.
PRP had taken over about 95% of my body. By August, after six months of Skin Cap, I had some on my hands and feet. What a great feeling. Then my miracle drug got pulled off the market. I feel it coming back. I just got back from my dermatologist, she's going to see about finding some Skin Cap for me. In the meantime, you guessed it, more ointments and lotions.
I remember thinking many times how I would not wish this curse on anyone. Right now, I wish this on those people at Glaxo for doing this to me again. What have I done to them??? I want them to know what it feels like to be depressed and feel like a mutant. I want them to scratch all night long, worrying about waking up their spouse, getting little or no sleep.
Bring back my Skin Cap, it can't be any worse than Tegison, and it works.
From Alberta Cody:
I WANT THE SKIN CAP BACK ON THE MARKET!MY HUSBAND HAS HAD PSORIASIS SINCE HE WAS 16 AND HE HAS NEVER EVER HAD RELIEF AS HE GOT WITH skincap I THINK THE ONES THAT STOP IT HAS NEVER EVER HAD TO SUFFER WITH THE DANG STUFF.I WISH THEY COULD THEY WOULD CHANGE THEIR TUNE.....PLEASE AS SOON AS IT'S AVAILABLE PLEASE LET US KNOW!!!!!!!!!!!!
I HAVE NEVER EVER SEEN MY HUSBAND FEEL SO GOOD ABOUT HIMSELF UNTIL HE FOUND YOU skincap IT'S THE BEST AND WE FEEL THAT IT'S SHOULD BE UP TO US THE SUFFERERS IF WE WANT IT OR NOT.WE WANT IT BACK ON THE MARKET LIKE YESTERDAY PLEASE.IT'S THE BEST THING SINCE GOD WAS CREATED
From Christopher Mellet:
my wife has been looking for something to take away the pain and red patches of this terrible skin disease. why is it when so much time, money, and effort is spent on finding cures ( or reliefs ), on something that when they finally find SOMETHING, that someone has to screw it all up!!! this is NOT something to take lightly!!!
Skin Cap is the first thing since injections that has cleared up my psoriasis entirely. I ran out of it a month or so ago and the psoriasis is creeping back. (I have a relatively minor case, but very annoying nonetheless.)
Good work on your web site! Keep up the fight. Hopefully, Skin Cap will be proven to be relatively harmless.
From Jean Laplante:
I am a 47 year old male, and have been suffering from psoriasis since the age of 25. Like everyone, I have tried just about anything avalable, but nothing seems to work, exept for SKIN-CAP. I started using it in May, and by June, for the first time in years, I felt good enough to go to the public pool with my children. I would love to be able to go next year, but without SKIN-CAP, I don't think it will be possible. Since it was removed from the market, psoriasis has started to creep back onto my body. Here in Montreal summer is gone, but if it was summer now, you would not see at the pool.
One more thing, there are some medications that I have tried in the past, and when I did , I got all the side effects possible, but they did nothing for the psoriasis, and they are still on the market today. When I used SKIN-CAP, psoriasis melted away, and I had no side effects.
From email@example.com -- 10/14:
I'd like to say that SKIN CAP IS THE ONLY THING THAT HAS HELPED my condition!! I've been to SEVERAL dermatologists and NOTHING they did helped, and it was at a great cost to me--prescriptions especially and very frustrating not to have them work.
I don't use a large amount, just enough to keep the problem under control,and I am OUT of the product! I tried to reorder today and the # was disconnected.
From Kathy -- 10/12:
I have tried skin-cap and steriod injections straight into each leason and or patch which works fairly well but painful. I have tried skin-cap and it is so easy and painless. I want more!!!!!!!!!!!!
From R. Lopardo -- 10/11:
SUFFERED WITH PSORIASIS FOR 10 YEARS, HUGE AFFECTED AREAS ON LEGS, TORSO, ARMS, EVEN FACE.
SKIN CAP WORKS. NOTHING ELSE HAS.
From Darrin and Carrie Foddrell -- 10/11:
Skin cap has really been a blesseing to me!!. I appreciate this product. Severe skin problems are in my family . This is the one product that has really helped!!!
From Deb Church -- 10/10:
I am so glad to have finally found you! I have been frantically communicating with various agencies to BEG for more of this product and so far the most helpfull persons have been in Austrailia! Here in Canada I've been getting the beaurocratic run-around. After suffering with psoriasis for more than 20 years with approximately 85% coverage (including scalp and nails), I tried Skin Cap for the first time this spring. After years of assorted tar and cortisone based creams, extended periods of UVB (which only served to burn and further dry my skin), plus extended useage of Tegison and Soriatane without relief (and incurring some transient side effects along the way), I was amazed to see such a rapid and SUSTAINED clearing of my skin!!! I began to notice that I was able to move freely without the skin ripping open those thick patches. I became more free in my manner of dress and able to be more spontaneous and lighthearted than I can ever remember. It was the first time that I ever realized just how trulely debillitating this disease had become for me. Then, without warning, they pulled it off the shelves citing an unlisted corticosteroid as the reason for the recall. Are These People Crazy ??? Don't they know what rapid cortisone withdrawal does to a person ?? Don't they realise that to a psoriasis patient longterm topical steroid therapy is their only and safest recourse anyways???? For myself, my only other options are Methotrexate or Cyclosporine....neither of wich is a safe venture for a person with my history of renal failure but the only recourse open to me if Skin Cap is denied. FLAIR ????? What a beauty I am in the middle of right now. In just over a month, I have surpassed the previous 85% coverage with a lovely new Guttae Type coverage witch is promising to calm down to an even thicker overall plaque. Do I sound ANGRY??? You bet! I percieve that it is probably an improvement over the deep and threatening depression that I first felt at IT'S return... but that depression lies just under the surface. I wish that I could do more than just complain, but every effort of mine has been blocked. Spain (the origional source and producer) has the products but is being blocked in exporting it and recently a memo to the Customs People was circulated over the net, the contents of which had those workers on the lookout for any of this medication entering the country to be seized at customs. So much for the idea of travelling anywhere to buy it for yourself! With any luck at all, these responses may get "the powers that be " to move a little quicker. Meanwhile I will gladly speak with anyone necessary to obtain more Skin Cap....with my Physician's support if necessary. Please keep me " in the loop"....
From Laura: 10/10:
I HAVE HAD PSORIASIS FOR THE PAST 16 YRS. HAVE TRIED EVERYTHING INCLUDING PUBA BY THE HEAD OF JOHN HOPKINS DERM. DEPT. I TRIED skincap AND WAS 99% HEALED WITHIN 3 WEEKS. I HAVE CALLED THE FDA IN WASH. (DR. FRIEDMAN DEPT.) AND EXPLAINED HOW skincap HAD HELP ME WITH NO SIDE EFFECTS. I SKOKE TO MARY KREMEZER 301-827-4570.
From Pamela Mulder -- 10/9:
For a little while I got to remember what it felt like to look nice, to have real skin that people didn't stare at. This page helps, because it helps to know I am not the only person who is sitting here cracking and bleeding and turning back into a fish that can't even swim in public. But it wrong for any of us to be put through this.
From Jody in MA -- 10/9:
SC was the ONLY thing that even remotely hepled our daughter with severe scalp P.
From Jill Hat -- 10/8:
I have had psoriasis for 2 years, my freind recommended me to use skin cap and after 4 days it was nearly gone. I have now been able to keep it under control with periodic use. I agree that consumers should be aware of what is in the product they are purchasing. If in fact it does contain steroids or whatever, then so be it. It doesn't change the fact that it works and for those people who don't have psoriasis they can't seem to understand, no matter what is in it, it saves persons like myself and many others many sleepless nites due to itching & the embarrasment of flaking. I would think that the NPF would be adimant about getting it back on the market, no matter what it contains. If we have to get by precription then that's okay to. The NPF should be acting on our behalf as well as the general consumer. The NPF & the FDA should get re-focused to get Skin Cap back on the market regardless of whats in it. People like us depend on Skin Cap for our own personal sanity at times.
From Richard Jamar -- 10/8:
I am just another one of the psoriasis sufferers who this past summer could wear shorts, short sox and short sleeve shirts for the first time in many many years...thanks to Skin-Cap. Totally clear body without side effects. Lets do what is necessary to bring it back.
From firstname.lastname@example.org -- 10/8:
I think skin cap is the best treatment on the market. the methotrexate made me feel awful and I would have needed a liver biopsy had I stayed on it longer. Skin Cap has completely cleared me but I still get flare ups while using it-does anyone else. Also does anyone get a reaction to the sun while using it? I called the Mexico number and they are sending me an order form-I hope it works out. If it does I will let all of you know.-NArnold741-write me and let me know.
From Kathy Huff -- 10/7:
I also suffer from psoriasis. I used the so called wonder drug temovate, I never received any improvement. I have had this for four years now, and the only medication that has showed any kind of significant improvement was the skincap. The changes started within 12 hrs with no side effects. Just when it is totally under control they pull it from the market. In my opinion Glaxo Welcome is just in it for the greed of money. They don't care if you are cured because they want you to keep buying their product. If it worked would be one thing but it doesn't so they strike at something that does and they're upset because they don't have it. From now on I will not buy a medication produced by Glaxo Welcome. If any new news comes out about skincap product please let me know.
From Joshua Henderson -- 10/6:
This is something that surprisingly no one has written about yet. My wife has had eczema all her life, and has tried many so called solutions like many others have. The product Skin-Cap completly cleared up her skin also, and I do mean completly. I have to tell you that it was not only amazing for her, but for me as well. I don't know if we even care if there is steroids in Skin-Cap because it is the only product that has truly worked. I don't care who gets the money from us because both pharmaceutical companies are not in the business of helping people they are in the business of making money(Glaxo, case in point). I applaud your stand on this issue and the way you chose to convey it. I hope and pray that there will be a quick resolution to all of this and wish all of you good luck.
From Jim V. -- 10/7:
My cousin and I suffer from Psoriasis and have been for years. I have taken Alpha Keri baths and washed with Pine Tar soap - N.F.G!!! I've tried temovate, Diproline, Dovonex (sorry about any incorrect spelling) till I can see the veins in my arms from thinning skin. Nothing works. My cousin informed me about Skin Cap and for the first time in 10 years was able to go to the beach, wear tank tops and shorts and really start to enjoy my summers. How many times have people, who dont know what you are suffering from, ask," aren't you hot in those jeans and long sleeved shirt in this 90+ july?". Well, I was sweating my ass off. I didnt want anyone to know I have Psoriasis because it's no eye candy! Skin cap worked so good and in such a short amount of time, I went out and got a tattoo and didnt have any problems with it. My arms and legs are a mess again and parts of my face are flairing up. I need help. I will be trying a product called exorex and praying this will work if skincap doesnt come back.
I dont care if the magic ingredient is monkey shit! All I know is Skin cap works and brought some dignity back into my life.
From Don Vanemon -- 10/7:
just to let you know i used skin cap for over a year (about 15 mo.) and was clear for the first time in 16 yr. i had no side afects using skin cap. we need this product back even if its with a prescription.
From Holly Laibson -- 10/6:
I, like many others, found that it worked wonderfully and I am very upset that it has been taken off the market
From David Tozer -- 10/5:
I think what your doing is commendable.My father suffers really badly and skincap is the one that works really well.
From Stu -- 10/5:
love your web page and I am a big skin-cap supporter. Just to let you know, I ordered six cans of skin-cap from Unique Image through their web site and just recieved it (it took about ten days and was $37.95 per can). The company is a little suspicious I guess since it was mailed in an empty carton of fax paper from Mail Boxes Etc, but who cares I was able to get it. Also I ordered six cans from Herbs the Natural Alternatives Center, but have not received it yet. Thanks to your web site I was able to get more skin-cap. Keep up the good work.
From Shawn Sampson -- 10/4:
My story is no different than any other posted on this page. After years of expensive presciptions that offer very little relief and a liver that has been permenatly damaged from methotrexate, I finally found somthing that works SKIN-CAP.
I can now even take my shirt off in public, somthing I havn't been able to do for over 10 years, now I am having a huge flare up, I have no more 'stuff', and I feel like my new found world is collapsing. Please put me on your mailing list, I want to know as soon as these beaucrats get their head out of their ass.
From Martha Brinsko -- 10/3:
I, too, have used every product under the sun without decent results until Skin Cap. I don't care what's in it!! I am now using colbetasol ointment with only fair control of my psoriasis
From Oded Degani -- 10/3/97:
I'm also disgusted, like the rest of the psoriasis sufferers community, with the actions of the FDA and NPA(with the latest, I've severed relationship long time ago. With the FDA--well, I have no chioce. Please, let me know if there is anything I can help with. I have suffered from Psoriasis for 43 years now, and NOTHING was as effective as Skin Cap.
From John Robinson Jr. -- 10/2/97:
I have been through the same thing that you all have. I was doing the UVB treatments and the light pills that they were having me take made me sick. Having to drive 40 minutes away from my home really sucks. I was very greatful to find SC. It has been the only thing that has worked for me and I just found out today what has been going on. I normally purchase 3-4 cans and I just ran out. It also seems that the distributors who are still willing to sell are captilizing on this controversy buy raising the price. We do what we must. Please let me know what I can do to help.
From Felice Farber -- 9/30/97 5:00 PM:
After suffering from psoriasis for 30 years, I finally found Skin-Cap. I bought one can and it worked like a charm. Now, the supply has dried up. I'm dreading the day the flaking comes back.
From Darrell -- 9/30/97 8:02 PM:
Please let us know as soon as possible where we can get more skincap. As a fellow sufferer who has finally found a treatment that works, the news that now we can't get it is devastating. In addition to psoriasis, I have a condition called psoriatic arthritis, whereby when the skin lesions get bad it affects the joints causing excruciating pain. In turn this limits my ability to support my family and affects joint mobility. I am going to do what I can on my end to let the FDA know that they need to make sure this product is kept available to people who suffer from psoriasis and related skin disorders. Concerning the relief in pain to coincide with skincap, the lessoning of pain has to do with the lack of scaling. With skincap there is no scaling as of the second day, thereby relieving the aggravation of the tightening of the skin by the scales. Since the Psoriasis Foundation is located in Portland, Oregon, are they aware that this product works as well as it does, and are they doing anything to avert or speed-up the FDA action?
From Kevin May -- 9/30/97 2:01 PM:
My father and I were both regular Skin Cap users and were very happy with the product. As all the other respondents have said, it worked for me and there were no noticeable side effects. My dad tried DermaZinc but it didn't work for him.
From Thomas McHugh -- 9/30/97 11:08 AM:
I have had psoriasis for over 10 years. It seems to get progressively worse every year. I also have psoriatic arthritis, and have been told by my Rhematologist that I can control my arthritis by controlling my psoriasis.
Skin Cap is the only product that has ever controlled my psoriasis! I never saw any bad side affects. I usually do not have allegiance to brand names, but I want my SKIN-CAP.
From Veronica Fullard -- 9/29/97 6:26 PM:
I have had psoriasis for about 5 years now, since I was 18 years old. In that time, I've had two different dermatologists, and used many different types of medicines, including Temovate, Dovonex, and Micanol. I took cod liver oil pills. I tried tanning up to four times a week. Nothing worked. Then, about six months ago, my grandmother saw an advertisement for Skin Cap, and had it sent to me. Within a week, my skin was 75% clearer than I can remember it being since the disease first developed. Now, I have only the smallest dots of psoriasis that appear on my arms and stomach and back, usually in areas where I used to have large patches. And htese spots clear up with minimal treatment from Skin Cap. I have had no negative side effects from this treatment. (Others, such as Micanol, left my skin severely irritated -- I couldn't wear a pair of jeans without a soft tee shirt tucked into it...I had many, many spots on my stomach, and the denim cafed anyplace that the Micanol touched until I was in great pain.)
From Chad Dominie -- 9/29/97 8:17 PM:
Another success story with skincap spray. My sister, neice, myself, & their friends have had the same excellent results as described by other users. There must be something we can do to get Health Canada & FDA to resolve this issue and put us all back onto the right track again. Also, once this occurs (positive thinker) we need to be able to spread the word through the media to other psoriasis sufferers who may not belong to associations or have access to the net. Please add my name to your list of users & keep me posted. Why don't we unite somehow and use the media to bring about change?
From Ed Bennett -- 9/29/97 8:55 AM:
Skin cap worked for me. I am clear for the first time in 22 years. You can quote me anywhere... I want it back on the market.
From Steven Leonori -- 9/28/97 11:10 PM:
I have been using Skin-Cap for one year now. I am 21 years old and I have had psoriasis since I was 6. I have used several treatments such as tar, ultravate, and temovate. These products worked to clear up my psoriasis, but it always would reappearing days. With temovate, my skin would become very thin and tender. After using it for a few months, it would lose its effect. When Skin-Cap was suggested to me by a relative, I thought it would be another hopeless attempt to clear up my psoriasis. He told me that he had been using it for a month, and it had completely cleared up his skin. So I ordered two cans of the spray and immediately began treatment. It was easy to apply without any mess. Within days of treatment, I noticed the most significant change I had ever seen in the condition of my psoriasis. After approximately three weeks of treatment, my psoriasis was completely gone. This was the first time since I was 6 years old that my skin was free from this nuisance. Now I only have to use the spray occasionally to keep my condition in check. When my skin doctor told me it was recalled because it had, as he simply called it, temovate in it, I was shocked. I told him I had never experienced any of the side effects I had with temovate and that it had worked better than temovate ever had. When he told me I should stop using it immediately, I told him I wouldn't as long as I still had some left. I immediately purchased the remaining Skin-Cap in my local drugstore, and I am just hoping it will last me until this ridiculous problem is resolved. This is an obvious attempt by Glaxo to get a far superior competitor off of the market. I hope all the test results are in favor of Skin-Cap. For the sake of me and all the other psoriasis sufferers in the U.S., GIVE US BACK OUR SKIN-CAP.
From D.P. Ray -- 9/26/97 2:48 PM:
I believe that the least government is the best government. I also hope that existing government agencies that are established to HELP & PROTECT the people of our nation are not as corrupt and careless as their action make them appear to be.
Skin Cap Products cleared my psoriasis after years of suffering and thousands of dollars spent on dermatologists and nasty medications. When I first tried Skin Cap I purchased it from a local Walgreens Pharmacy at less than half the price Internet and mail order distributors were charging, before or after the FDA ban.....Did anyone else know how your were being overcharged? Walgreens charged $12.99 for skin cap cream !!! (the other guys are more than twice the price)
When it comes to helping people it is obvious that most are more interested in helping themselves.
Let's get nasty with the FDA, Glaxo and anyone else that is more interested in the $$ than in people.
If anyone has a suggestion of how to get closer to the individuals that control our lives so irresponsibly, I want to know and help get to them.
I will be happy to offer free space on my commercial web site to fighting this Skin Cap ban.
I write my letters weekly or more often when possible to all agencies concerned. I hope that all of you out there are doing the same.
Keep up the fight...make them do what the people want, isn't that what our GOVERNMENT is suppose to do?
From Nancy Marsillo -- 9/25/97 3:40 AM:
my husband suffers from severe eczema. he's tried it all-steroid creams, prednisone, light treatments, vitamin cocktails, chinese herbs and on and on. along comes the miracle skin cap-it has changed our lives. then the FDA announcement. luckily our derm feels there is a glaxo scandal going on as well as has urged him to continue usage. but we are very afraid it will be banned in the near future. feel free to quote any of this or if you need people to rally around the cause just let me know. in fact, i have begun to draft a letter to send to prime time live, 20-20, and dateline nbc about this whole eczema experience and the skin cap controversy.
From Tom Gotich -- 9/25/97 5:24 PM:
I've been suffering from psoriasis for over ten years now, and had never found any treatment that has performed as well as Skin Cap. In fact, when my dermatologist first urged me to try it(Feb. 97), I was beyond being skeptical. I gave in; tried it, and was shocked. My psoriasis is very stubborn and I have at times had over 60% coverage. The response to Skin Cap was immediate. Moreover, within a week of use, the large patches that I've been dealing with for many years were almost gone. Since last winter, I've been psoriasis free. It's been great!
Well, yesterday I tried to order more Skin Cap and was shocked that I could not. My psoriasis is making a come back, and will be full-bore before my scheduled visit with my dermatologist on OCT. 1st. My opinion is that this treatment should be available no matter what or who is behind it. If Temovate is found to be in Skin Cap; it will not matter to me. I do believe that if this is the case, there should be some action against Cheminova, but at the same time we should be able to have access to the treatment that works.
I did try one of the clones; it did not work at all; they seem to work no better than water.
In closing, I hope that the FDA is over-reacting and that someone will re-market the Skin Cap product soon.
From Raymond Allen -- 9/24/97 3:58 AM:
Skin-Cap has also been banned in Canada due to the FDA decision. I,like you have run the mill of controlling agents with little or no luck, until Skin-Cap. I spent 3 years on methotexate, what has this done to my liver? Only an autopsy will tell. It is very unfair that any political group can make such a devastating decision in the blink of an eye without considering the ramifacations for the people "IN NEED OF SKIN-CAP". I have tried everything I can here in Canada including writing letters and making phone calls to politicians, but to no avail. They all state that until the FDA clears Skin-Cap or makes some sort of a decision we also will be deprived of this wonderful product.
From Jacklancas@aol.com -- 9/21/97 10:07 PM:
Thank you so much for your interest in the wellfare of others. I would like to find skincap A.S.A.P. If I waite too long, it gets very bad. I have used skincap for over a year with no side effects at all. The politics of skincap will hurt many people.I should be offored a choise. Perhaps we should have a national hunger strike until they give in to our needs.
From Andrew Childs -- 9/21/97 9:46 AM:
33 YEARS of constant PAIN, ITCHING, DEPRESSION and SELF PERSECUTION. I can now imagine a life with out them :):))) I have experienced a life without them since March 1997. That is when I began using Ski-Cap.
Not to bore anyone with details of past treatments and special diets, I will just say I have tried all the Last Resort drugs and procedures with minimal, temporary relief.ALL TREATMENTS HAVE SERIOUS SIDE EFFECTS.
I am the one who has always had to make the final decission on the course of action of what to treat my (our) devastating condition with.
At 7 years of age, at 10,13,18 and into adulthood, I have made to make the hard choices that would change my destiny year after year. TO SAY THE LEAST, I am very skilled at accessing what may or may not be in my best medical interest. I KNOW HOW to strike a balance between risk and quality of life. I have been chasing my full potential as human being and the elusive cure for psoriais since childhood.
While it is obvious that Skin-Cap is not a cure, it is obvious that with it's positve effect on the symptoms of my psoriasis , for however long it works for me, I will be a more productive citizen on earth.
My mental capacity, mental endurance and clarity since being lession free has allowed me to accomplish more toward a higher quality of life for my children and wife in the last six months, than in the previous three years combined.
I have no doubt that whatever is in Skin-Cap, it will have side effects.
There are no panaceas in life.
I pray for a cure of all diseases.
Add me to the list!!! I don't care whats in it!!!!!! Give me more more more more more more
From Tom McCarthy -- 9/21/97 9:46 AM:
I have been afflicted with psoriasis for over 35 years. During that time I have tried countless types of messy creams and lotions with no visible results except the stains and odors that accompany these products. Dovenex offered some improvement and relief but it wasn't until I tried Skin-Cap in May of this year that any real results were visible. During a six week period of time I went form having massive semi-open sores all over my arms and legs to being able to actually go swimming in a public pool and publically sun bathing.
I hate to think of going back to those painful sores.
From Michael Keller -- 9/19/97 7:13 PM:
Despite what some people think, you are performing an invaluable service by running your web site. I cannot understand why the expression of a viewpoint is so threatening to some people. Please don't let these "small thinkers" intimidate you; you are correct and there is no possible argument that can justify their attempts to censor you. The free exchange of ideas is fundamental to the very concept of the Internet.
Please add my name to your list of those who are looking for skin-cap. I do not have psoriasis. My beautiful wife has been fighting it for many years. Each year it gets worse. When we found skin-cap about 3 months ago, it was for her a miracle. At the end of the first month, she wore a short skirt to church for the first time in years.
When the FDA ban was announced, Cindy burst into tears. As her small supply slowly ran out, I watched as she went from the happiest in my memory to profound depression, and I am frightened for her. This whole thing is so unfair to her, and to you.
Please keep up the good work that you are doing.
From Alex Kremenetsky -- 9/20/97 9:56 PM:
I've been suffering from psoriasis for about 6 years and tried many treatments including tar medications and PUVA. Skin-Cap was the only one that virtually eliminated such symptoms as itching and flaking although it did not restore normal skin. The skin probably has already been damaged by using such things as Temovate.
I've been using Skin-Cap for 9 month without any side effects and actually used it aggressively only for a month. After that I needed less than one can a month to control the symptoms. Skin-Cap had the same great effect on my father who's been suffering from this decease for 20 years.
I agree with everything that you wrote on your home page and I hope that this issue will be resolved soon. Meanwhile I ordered two cans of Hydra-Skin spray from Exor Medical Laboratories. Instead of that they've sent me DermaZinc which has the same active ingredient. I am not sure if it is the same product under the different name or they simply cheated me. But I have no choice. I've read on the user group that DermaZinc is much less effective than Skin-Cap.
So I started treatment today and I can keep you posted on how does it work for me. Please put me on your list of people who is seeking Skin-Cap. And thank you for your great job of trying to save it.
From David Bryan -- 9/18/97 5:25 PM:
I have psoriasis for over twenty years. I went through the usual routine PUVA temovate,etc. The PUVA cleared 90%,but only temporarily.I started using Skin-Cap june 1996,it started clearing right away. I used about a can amonth for maintenance treatments.This past year has been the greatest wearing shorts on vacation,swimming,not leaving flakes on everyones furniture.I have had no ill-effects and would continue to use it if it was available.I stopped using it with the first notice from the NPF about steroids. I still have a few cans, but figured I had to stop sooner or later saving these cans when the P comes back.I stopped cold so far have not had any problems other than psoriasis is slowly coming as expected. I am not supporting the NPF this year,I feel there is too people having good results to ban this product.I do not believe we will see this product on the market in any form, companies like Glaxo have too much invested in their own products.Smaller companies wont take them on.
From Darren Merrill -- 9/18/97 7:06 AM:
My history/testimonial on the use of "Skin Cap" is as follows:
Trial amount (about 3 days worth) from dermatologist. LOCATION: large patch on left abdomen/left thigh. RESULTS: response within one week after stopping use; plaques stayed away for over one month, some very small plaques redeveloped in the previously heavier locations.
1st can (used 2X/day for 1 week, 1-1 1/2 months later) from dermatologist. LOCATION(s): both legs/knees, abdomen, elbows. RESULTS: within 1 week after emptying the can; scaly plaques gone!!!!! pink/reddish areas in place of scaly plaques!!! could touch soft skin once again. After about 1 month or more plaque free, some small pea size plagues resurfaced.
2nd can (used 1X/day for 2 weeks, 1-1 1/2 months later) LOCATION(s): thighs, knees (less), abdomen, elbows, upper/lower arms. RESULTS: within 1 week of use small areas gone. Pink/red areas clearing. After about 1 month smaller ones reappearing in different areas.
I wish I had used a camera and calendar to document this! It was unbelievable. If I hadn't of had over 22 years of moderate to severe psoriasis. I wouldn't have believed it. This was the first thing to "take it away". All the other creams, ointments, didn't respond like this did. The response was rapid, the plaques disappeared. I can wear short sleeved shirts without people looking at my elbows. They look at me!
Well, it's been over 2 months maybe 3 since I last used the skincap, I have one patch 6-10 mm on my abdomen, and a 10 to 20 mm patch on my left leg. My elbows and forearms are still clear!
When I read the information and saw Temovate on the list, I was surprised because when I used it, my placque showed very little if any response. Please keep me posted on the controversy.
"All substances are poisons: there is none which is not a poison. The right dose differentiates a poison from a remedy." Paracelsus, 1493-1541; quoted from Casarett and Doull's Toxicology the basic science of poisons, 4th edition.
in other words, "Everything is a poison and everything is an antidote, it just depends upon the dose."
From Frank -- 9/17/97 12:34 PM:
Congratulations on your efforts - I, for one, am very grateful and happy to lend my voice. Your recitation of onerous, expensive and dangerous treatments already suffered to no lasting result or to no result, period, as set forth at the beginning of you web page precisely describes my experience, only excepting the direct injections. For about eight years both of my hand palms have been a painful mess. The area also spread to my wrists and the sides of my hands (as well as to my 'plumber's crack!). My only relief came in the form of three or four mysterious complete remissions lasting perhaps two-three weeks. One period came after an ahti-fungal treatment given in response to a positive culture. Others while hospitalized with serious leg fractures. Several weeks ago, almost as an afterthought and after I had said disconsolately that I didn't see any point in continuing to try creme after creme, my dermatologist at Johns Hopokins Hospital gave me the skincap number and specifically recommended the spray. I tried it. The results were textbook. My tailbone is completely clear as are my wrists and the palms are almost normal. But in spite of the fact that for ten days I have treated only my palms, I'm within two days of being out of my one can of spray and most worried that I'm in trouble again. My order has gone unfilled because of some intractable bureaucrat being manipulated by the money people. It's not fair. Please continue to work for some way to legitimize procurement of skincap if only as a granted exception while the tortuous (and I'm sure usually necessary) approval process is gone through.
From GZJJ18A@prodigy.com -- 9/16/97 1:41 PM:
I, like the dozens of others who have submitted testimonials, have run through other products: coal tar mixtures, Miconal (some relief but not much clearing), Dovonex (nothing), Lidex (initially good results but rebound after stopping), PUVA (slow and expensive, but good results; still some stubborn patches), and Temovate (relief but not a lot of clearing). All of the above require anywhere from an hour a day to three hours a day to apply, or to travel and tan. Until Skin Cap. My dermatologist recommended it because of the stubborn patches on my elbows and legs, which the PUVA treatments weren't helping. PUVA helped the rest of my skin, but not all of it. The only side effect I had from the spray was some itching on surrounding skin if I wasn't careful where I sprayed and didn't use the special nozzle. I have one can left and only use it on a couple of spots which occasionally flare up; the best combination I've found is PUVA (complete with Psoralens Ultra pills) once a week to maintain clearing, coupled with Skin Cap when I see a spot start to develop. I'm 36 years old and can wear shorts and a bathing suit for the first time in 8 years! Flushed with new-found confidence I'm taking a water aerobics class -- something I've wanted to do for years but couldn't because of the inhibiting effects of psoraisis. Skin Cap has absolutely changed my life. I find it unconscionale that a treatment which works is pulled from the market because of stepping on Glaxo's toes. It's in direct competition to Temovate, it works better, it's cheaper (unless your health plan covers prescriptions), it WAS easily available, and it doesn't make the user give up a significant portion of your day to apply it. I don't much care if it's available only by prescription...just MAKE IT AVAILABLE. Anybody know of any sources? I'm about to try the Caribbean and/or Spain.
From Don Tidwell -- 9/16/97 5:27 AM:
Please let me know if there are any Pharmacys in old mexico that handle skin cap. This has been dark turn for my life. The steroid side effects cant hold a candle to side effects of psoriasis. Thank you
From Tim Renninger -- 9/15/97 7:01 PM:
I HAVE BEEN USING SKIN CAP FOR 6 MONTHS AT FRIST TWICE ADAY, THEN ONCE A DAY. NOW I JUST USE IF A SPOT SHOW UP ONE SHOT AND IT'S GONE THE NEXT DAY. I HAVE NO THAT'S NO SIDE AFFECT! I HAVE TOLD 5 OTHER PEOPLE WHO HAVE USED AND THEY ALL LOVE IT! THEY HAVE NOT HAD ANY SIDE EFFECT AT ALL. I HAVE HAD PSORIASIS FOR 15 YEARS NOW AT AGE 36 I CAN WEAR SHORTS AND GO SWIMMING AGAIN. THANK TO SKIN CAP. THANKS TO YOU WEB PAGE I WAS ABLE TO GET SOOM MORE SKIN CAP. I HOPE THAT ALL THE PEOPLE THAT ARE WRITING ARE NOT STOPING HERE. I HOPE THEY ALSO WRITE FDA, N.P.F, GLAXO, AND ANY ONE WHO LIST FROM CONGRESSMAN TO NEWS MEDIA! LET'S GET THE WORD OUT WE WANT ARE SKIN CAP BACK AND THE SOONER THE BETTER.
From Johanna -- 9/14/97 3:59 PM:
I, like everyone else who has responded, was shocked when I found out Skin-cap was taken off the market. There is definitely more going on than the public is hearing about and it is MONEY. Someone stands to make alot of it and I'm sure it will be reintroduced by a pharmaceutical company for a higher price than what we have been paying. But at least our insurance will probably cover it. I am concerned that it may take years to get it approved. It could take a long time to do the clinical trials and the FDA could drag their feet as well since this is not life threatening condition.
Considering how dangerous other treatments for psoriasis are (methotrexate, etc), the outcome of this whole situation, should it take a long time, only demonstrates the enormous flaw in our nation's health care system.
This whole thing has made me realize that there may be many cures out there that we may never hear about simply because there isn't pharmaceutical money involved. Very little research goes on with orphan drugs and the established medical community relies heavily on the pharmaceutical companies to fund the clinical studies that they put all their faith in. Since HMOs are so interested in making money by saving on medical expenses, perhaps it's time they get involved in funding some of this research instead of padding their own pockets.
I have stocked up on the stuff, yet how does one predict how much they will need, when we have no idea how long it will take to resolve this situation?????
From Amy Perkins -- 9/14/97 11:07 AM:
Please e-mail me with any info on how I can help get Skin-cap back in the U.S. I love the way Skin-cap works and miss it very much! I have psoriasis on my face and scalp and it cleared it up 100% while I was using it. I only needed to use it once or twice a week to keep it under control. Now it is coming back and I would really love to have a little blue can of Skin-cap. I wish I had stocked up on it, but I had no idea it would be taken off the market. Please let me know if you hear of anyone selling it or when it will be available again. Thanks!
From Tony Tedeschi -- 9/13/97 5:39 AM:
I, too, have had great success with Skin-Cap. I am even considering a trip to Mexico or Amsterdam (costs about the same) to bring back as much as possible. My question is: How much can I bring back for personal use? I've been through all the treatments (and some I'll bet you've never heard of). This product works. Please, FDA, get this product on the market. If it is by prescription, then that is fine. Just get it out there in safe doses in a reasonable amount of time. This would make a great media story. It affects so many people and I am certain that there are plenty that don't even know about S-C.
From Tom Keller -- 9/13/97 3:10 AM:
Help me skin cap is the only product that has ever helped my acute psoriasis...I have been on every steroid creme known to man. Have tried methotrexate and tegison without much success and light treatment as well. I desperately need to find a pharmacy outside of the US that would ship a few cans for personal use. Any help you could give would be appreaciated.
From Peter M. Eckman -- 9/10/97 10:05 PM:
Upon browsing your web pages, I noted a section asking for comments from users of Skin-Cap. As a former user, I was eager to comment. I have had light (but relatively extensive) psoriasis for approximately 15 years. I have tried a number of different treatments including but not limited to: UV (and PUVA), tar, tape, Aclovate and Dovonex. Of these, I found Skin-Cap to be the most efficacious (by far) as well as the easist to use. I was delighted to have found a product that appeared to be a safe and effective treatment option and was pleased to take part in a clinical trial of Skin-Cap by Dr. Charles Crutchfield at the University of Minnesota. The results were striking. I did notice some dilation of small vessels near the treatment area, but wasn't concerned as I believed that the product was as safe as it was efficacious.
Upon being told by a dermatologist that Skin-Cap had been shown to contain a dangerous steroid, I reluctantly discontinued my usage of the product and returned my remaining supply to Cheminova for a refund. After an argument with the sales representative as to whether the product had been shown to contain the material in question (as a scientist myself, I'm inclined to trust places like Glaxo and tho Mayo Foundation), I was able to send my remaining cans back for a refund. I was very disappointed at this response as the person answering the phones was clearly answering my questions from some sort of script without regard to the dangerous nature of their product and the harm that it could cause their customers.
You mentioned on your web page that:
"Glaxo's study found undisclosed (and probably trace) amounts of clobetasol propionate in Skin-Cap. This is not necessarily cause for alarm. In fact, Temovate contains .05% clobetasol propionate."
Although Skin-Cap may indeed contain very small amounts of the compound in question, the amount alone is not a reliable indicator of side effects. Botulin toxin is deadly enough to kill in nanogram quantities. There are plently of other examples in the medical literature.
You also state:
"If you use Temovate for too long, it could eat a hole in your skin. I would know, because it happened to me. Using Temovate for too long means using it for more than two weeks. I, and many others, have been using Skin-Cap for over a year without ANY side effects."
That's why Temovate is a prescription drug. Use even WITH a doctor's supervision can be dangerous. The same is true of Skin-Cap. The product is obviously useful (I was part of a clinical trial of Skin-Cap) but that doesn't mean that it is safe to sell as an over the counter remedy for psoriasis.
"Has anybody thought it at all strange how well orchestrated this ban has been? How often do YOU see information about psoriasis treatments in the news? I wonder who paid for all those press releases and articles printed -- do you think it could be a drug company with alot of money? It's rather odd how much attention this has been getting, don't you think?"
Are you aware that the product was banned in other countries (Netherlands is one that I am aware of) first and reports from there were what prompted the FDA investigtion? I don't buy your conspiracy theory for a second.
How Skin-Cap has helped you - Feedback from other psoriasis sufferers
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