Save Skin Cap
All the information regarding the SKIN CAP controversy
From: Stewart <firstname.lastname@example.org> 12/7/97
It worked for me better than any treatment I have used in thirty-eight years of battling psoriasis. I bought one can of the spray from Nova and was clear long before it was gone. When I had an outbreak about a year later, I ordered another can and again was clear before the can was empty. I certainly believe that any risk associated with this product is less than that involved with other traditional treatments. UVB has the potential of causing skin cancer. Methotrexate can destroy your liver, cause birth defects, etc. And the steroid creams and ointments have only been limited in their effectiveness for me. I hope that Skin Cap is cleared and available again soon.
From: "Vic and Mel Sternby" <email@example.com> 12/7/97
I have been using skin cap for about 1 1/2 years. It is the only thing that has come even close to helping my problem. I went for about 1 decade not being able to go without a shirt or wear shorts without ridiculously high socks. I was an old dork before my time. Since skin cap I have been able to return to the swimming team. Something that I enjoy while improving my health. The only other side effects I have noticed is that I don't have to try and change my clothes at work so fast that my coworkers don't notice. I fully support efforts to return skin cap and would like information on how to assist in this effort. Thank you for your past help in orders I have received and your continuing efforts.
From: Mike James <firstname.lastname@example.org> 12/4/97
Open Letter to the NPF:
For years, the only product I have used that has successfully treated my scalp psoriasis was Skin Cap. It was quick, clean, easy to use, rather inexpensive, and had no apparent side effects. It was a dream come true.
Through what appears to be a highly political motive, or at least one that was financially based, the product was taken from the market.
I did receive your information about the removal, but it is my opinion that you have done little to try to help bring a product like this back on the market. I do not absolve Cheminova--they should have been up-front with their product. But my argument is now with you.
For example, your most recent multi-page newsletter did not contain one article about progress in bringing this product back on the market.
I am sure that I'm not the only one who, perhaps wrongly, see your inaction and failure to report as a failure for an organization that should be pleading for the re-introduction of this product. What are you doing? We're looking from strong leadership and direction from an organization which should be helping, not hurting us.
I'm disappointed in you. And from the sample of letters I have seen at one private web site (take a look at http://members.tripod.com/~saveskincap/) there are many more like me.
From: email@example.com 12/3/97
I too am a psoriasis sufferer and truley was heart broken when they took it of the market. Skin cap was the only thing that worked,for the first time in 13 years I was free from psorasis. I felt like a real person again. I can't believe people (FDA,Glaxco,ect.)would care more about money then people, but I guess I need to wake up. I don't care what is in it, I just want it back. I have no side effects, unlike I did with temovate and all the other medication the Doctors have prescribed over the years. I have health skin, not skin so thin you could count every vain I had. I just want Skin cap back.From: Rob Dirne <firstname.lastname@example.org> 12/3/97 It is now official. The 'new' skincap works on psoriasas just as well as mineral water. I had half of an old bottle left and got a new one with the adjusted formula in The Netherlands. One elbow I treated with the old and one with the new. One arm has got the patches back, guess which one...
This seems to indicate that the old formula had some potent thing in it that obviously has been removed (steroids?) Frankly I don't care if there are steroids in the old Skin Cap, it worked very well and for the first time in my life I was psoriasis free for a prolonged time.
From: "jaco" <email@example.com> 11/30/97
I HAVE TRIED ALL THE TREATMENTS AND NONE WORK! ONLY SKIN-CAP. EVERYTHING THE DOCTOR GIVES ME ARE STEROIDS BUT THEY DO NOT WORK AND SOME CAN HAVE TERRIBLE SIDE EFFECTS. I BELIEVE WE NEED SKIN-CAP BACK BEFORE I HAVE TO GO BACK TO THE OTHER STEROIDS. I DON'T CARE WHAT IT HAS IN IT BRING IT BACK.
From: Ridenjcmo@aol.com 11/29/97
I'm writing for my father, who has had psoriasis for years and has tried everything. The only thing that worked well was skin cap. He has tried supposedly similar products (spray) with no results. Let me know if you find a distributor that will sell skin cap. Thank you.
From: Barbara <firstname.lastname@example.org> 11/29/97
I used skin cap for about three months. It worked considerably better than anything else that my dermotologist prescribed. It restored a sense of self-confidence I had lost. And to date (it's been about three months since I stopped using it), I have had no known adverse reactions.
It's not surprising to me that American corporate interests are being placed above the interest of human beings. I suspected such a scenario the minute I heard that skin-cap was recalled. This is nothing new in the annals of American corporate greed.
If skin-cap is unsafe, then by all means let's find out quickly and keep the product off the shelves. If it's safe, let us use it as quickly as possible. To do otherwise is an outrage. If Temovate can be used under a doctor's care, why can't skin-cap?
Finally, when I ran to my dermotologist at the NPF's suggestion, she didn't know what I was talking about. She had never even heard about skin-cap. She asked me to provide her with information.
From: "Marsha " <email@example.com> 11/28/97
My father and I are both sufferers of psoriasis...and believers in Skin-Cap. We second what has previously been said and join all of you in the fight to save it!
From: Rob Dirne <Rob_Dirne@eurotransmed.nl> 11/27/97
Just to let you know that Skin Cap is freely available in The Netherlands since Skin Cap adjusted the formula to make the authorities over here happy.
The downside is that it probably doesn't work anymore... I may be just me and I have only used the new bottle for a week, but the effect is definitely a LOT less.
Will keep you posted on my findings.
From: Marabell@webtv.net (Mary Haralson Bowers) 11/25/97
It is the only thing that works and I will do anything to get some more, now matter how much it costs. I will be happy to add my voice to the 1,ooo of others who also need it.. Thank you Mary Haralson
From: Becky <firstname.lastname@example.org> 11/24/97
After suffering from embarrassing flaking and itching of the scalp for several years, and using everything I could find to try to control my problem, I was delighted when my THIRD dermatologist finally gave me something that actually worked. After my second shampooing, I could tell a remarkable difference in both the flaking and itching. I did not even mind that skin cap shampoo cost much more than a bottle that size of ANYTHING should cost, it worked, and my hair was even soft and managable. I am so disappointed that I cannot keep a supply on hand to keep my condition under control as needed. How long will it take the FDA to test SKIN CAP, and in the meantime what is out there that I can use that will help? Becky.
From: email@example.com (Bradley Laverty) 11/23/97
My name is Brad and I used Skin-cap for about 2 years with no side effects that I am aware of at all. I do have a few cans left, so I can't sell any of it but I did want to let you know that I am willing to join the fight to get Skin-cap back. I almost considered buying a considerable amount and starting a distributorship, if possible.
I am 29 and have had Psoriasis for quite some time and it now covers 70-80% of my body during the winter. Skin-cap was the only treatment that worked.
If there is anyway that I can be of assistance please e-mail me and let me know!
From: carl chaimovitz <firstname.lastname@example.org> 11/23/97
I have psoriasis and have been using skin cap. I have tried numerous other creams and treatments and nothing else seem to work as well as this. I also have told many people about skin cap and it has helped them as well. I am willing to do anything in order to promote skin cap and get it back on the market. I only have a few cans left and i do not wish to suffer the symptoms of psoriasis again. Please let me know where I can obtain skin cap?
From: Giuseppe Corapi <JoPino@concentric.net> 11/20/97
I've had Psoriasis for 10 years and have tried some creams but when I used Skin Cap(spray) it practically "cured" me. Two to three months ago I find out about it being pulled from drug stores because of a possible steroid present, and I'm thining "yeah... so?!, IT WORKS!!!" It figures, I finally find something that really works and someone else takes it away, surely there are others that feel the same way. Oh, and by the way, I used it for over 8 months and had no side effects I can remember. Now, my Psoriasis which used to be there is coming back and as far as I can tell the removal of Skin Cap from the stores has hurt me more than it has helped!
From: AlliiCat@aol.com 11/20/97
I used skincap on my forehead for about 2 weeks. It cleared up my condition beautifully. The trouble started about 2 weeks after I stopped. My skin began developping leisons that I neverhad before. My derm doc said it was steroid rebound and has been treating me for such with excellant results. No steroids in skincap? Ha!!!!!!!
From: "Mark S. Fica" <email@example.com> 11/19/97
Yes, I'm another psoriasis sufferer who has used Skin-Cap with fantastic results. Please add my name to your list of what I hope is a large number of users who are thoroughly PISSED OFF that the FDA, in collusion with the NPF and Glaxo-Wellcome, has caused so many people to be deprived of leading a normal life because Glaxo wants to continue to sell their extremely dangerous product to us!
From: "CECIL D. EVANS" <firstname.lastname@example.org> 11/19/97
MY WIFE HAS HAD PSORIASIS FOR OVER 20 YEARS. LAST YEAR WE FOUND OUT ABOUT SKIN-CAP. IT HAS BEEN THE ONLY THING THAT HAS HELPED HER. WE HAVE A LIGHT BOX IN OUR HOME BUT NOTHING HAS BEEN AS GOOD AS SKIN-CAP. HELP IF ANY ONE KNOWS ANY INFO ABOUT A SUPPLY..
From: email@example.com 11/18/97
Bravo!!! I too am a skin-cap success story, though I suffer not nearly as much as others judging from their letters (God Bless them all). Perhaps, if we can all get together, hire a chemist that is also afflicted, we can make this stuff ourselves and sell it AT COST (non-profit) to everyone who needs it. Don't say it can't be done...
Also, can you automatically forward each of these letters to Bill Clinton (he actually answered and email of mine) describing what over-educated shitheads (to quote F. Zappa) are running the FDA and how GLAXO must be totally in bed with those beaurocrats to get SC off of the market without so much as a day in court. Anyway, has anyone explained why Temovate (CP) works for almost no one, but magically works in skin-cap? Aren't they (GLAXO) really saying that they want a cut of the profits and fuck the people who need a solution?
I say boycott GLAXO; I will for as long as I live on this earth.
I also say fuck the FDA; these idiots haven'd done anything for Psoriasis sufferers or anyone for that matter; these are the same people who think that there are "acceptable levels" of pesticides, poisons and rodent hair that people can ingest, but who have nothing to say about consumption of meat and dairy products, which are directly responsible for human diseases of many varieties.
I have so much to say...
Are there newsgroups on the topic?
It looks to me as though the NSF is a owned by the pharmaceutical companies. Anyone have any goods on these profiteers? Pictures?
Can we get in contact with some of the people in Spain who know how to mix this stuff and what's really in it and set up a distribution system of THE INGREDIENTS? Getting them is probably perfectly legal. And then we post the directions for making the stuff.
If your'e of the more traditional sort you can send email to Bill Clinton at http://www.whitehouse.gov/WH/Mail/html/Mail_President.html. Maybe we'll get lucky and his daughter has psoriasis too.
From: G1O1D11@aol.com 11/15/97
I just have to say that after months of research trying to find an alternative treatment for my eczema ( not cortisone ) I found skin cap and within a few days the rash was gone from virtually my entire body. In combination with a strict diet and vitamin supplements I have maintained my health with the infrequent use of skin cap. If i have a few drinks or to much carbohydrates or sugar my skin may get irritated. I would use skin cap once or twice right away and avoid any further irritation. Even a shower is enough to trigger it or pollutants in the air. Am I supposed to go back to my idiot dermatologist so he can tell me that my eczema has nothing to do with allergies and I should be on prescription cortisone? Isn't that the steroid ? the immune suppressing candiadis inducing stuff that western medicine promotes the use of? Is that twisted or what! This whole thing really pisses me off. They must think we're fools. The FDA doesn't want skin cap on the market because it works. Eczema and other skin disorders is probably a multi billion dollar business and isurance companies paying for millions of creams and prescriptions that are a hassle and inneffective is probably paying the millions of doctors who don't know anything about nutrition or supplements, that are prescribing these immune suppressing drugs. I use skin cap in combination with my own personal regime and am in the best of health and I'll argue with anyone that's going to try and tell me skin cap has steroids in it and is bad for my health!!!!!!
From: firstname.lastname@example.org 11/15/97
My mother and sister both suffer from psoriasis. My sister has it over 50% of her body. I found skin-cap on the internet about a year ago and ordered it for them both. My sister cannot believe how well it worked for her. She lives in Ft. Lauderdale, Fla - and was able to purchased from a small store there. She just called me today to say that this store suddenly closed up and she can not find skin-cap anywhere. I called the 800 # that I had and it has been disconnected. Now what? Is there any where to purchase it. If you know of one, please e-mail me and let me know. She's getting desperate!! thanks!!
From: Mary <email@example.com> 11/13/97
I developed psoriasis when I was 18. I must say it is the most embarrassing skin disorder one can have. When someone doesn't know exactly what you have ask's if it's contagious while you are standing in a grocery line, and the clerk really doesn't want to handle your money it's a down right degrading feeling. I have been through all the treatments the dermatologists can think of...from applying the cream and wrapping the lesions in plastic wrap, light treatments, and the last resort which was being placed on a cancer drug called methotrexate, which has mild side effects and requires that you have a biopsy done every so often. I began using the skin cap in July of this year...I used it for about two weeks and all the lesions that I had cleared. I had NO side effects. For the first time in 19 years I had found something that worked with no ill side effects. All the research that has been done for this disease and finally they have proof from users that there are no side effects makes one wonder.....
From: G. Goyanes <firstname.lastname@example.org> 11/12/97
I came upon your page while browsing the web for information about psoriasis. I was quite surprised to find all the testimonials on your page with the amazing results that people were claiming to have gotten from the use of Skin Cap. On a fluke, I thought I'd go out and see if there was a bottle lying around at some pharmacy here in the city and to my amazement I found ONE. Naturally, having read all those testimonials I did not hesitate to pay the 31 dollars requested by the pharmacy. I must tell you that I have tried countless numbers of creams and ointments, but Skin Cap was the only product to completely rid me of psoriasis which I have had for over 18 years now. I am so content with the product that I am going to ask my dermatologist to prescribe it with the steroid it is purported to contain. I don't care what it has, IT WORKS. I would like to take this opportunity to thank you for your web page, you don't know what a change it has made in my life.
From: Jack F Martin <email@example.com> 11/12/97
It is the ONLY thing I have ever found to work. As a 20 year sufferer I have tried my share of solutions and have been disappointed by everything except methotrexate which is not good on a long term basis. I wore shorts this summer and actually swam for the first time in many years. After struggling for many years i thought the solution was here. I will send letters to the locations your site recommends, but will be pursuing obtaining some through a friend of my wife who has family in mexico. If I locate a source I will let you know.
From: pamela l mulder <mulder@MARSHALL.EDU> 11/12/97
I have, more than once, contacted my Senator / U S Representative to enlist their aid when trying to handle federal concerns. I have had very good results from this - I have gotton speakers to come for free to West Virginia from all over the world, big names; when my mom applied for SSI and was told that the claim would take at least 2 months and would probably be turned down (for a blind widow on dialysis....) my representative got her first check to her within a week. Student loan problems and tax problems have been cleared almost like magic ----
My point is that most people do not realize that your elected officials need to help constituents and that their staffs will go out of their way to help us.
Call or Email your elected officials. Explain your problem, describe your suffering, ask for accurate information and for help in getting what we need - SKIN CAP - NOW - OTC OR NOT!
For folks in West Virginia - please contact Senator Robert Byrd. His staff has already been informed of the concerns and problems, and he is very active in support of constituents. But he needs to know that there are a lot of us.
From: "Toni Tee" <firstname.lastname@example.org> 11/11/97
We bought some skin-cap in Holland but it seems that the formula has been changed. It smells different then our first cans of spray, and the effect is also different (we have now less result).
From: D Stow <email@example.com> 11/10/97
I am 35 year old male. I have been dealing with psoriasis approximatly 10 years now. the Patches started out smal and only a few, with the largest being on my scalp where you couldnt see it.
Since then it has spread and now covery approx 50% of my back, stomach, arm and legs.
I had just found out about skin-cap and was using it for about a month with great results. I called to order more when I found out it had been removed from the market.
I would welcome any updates and e-mail you may send out.
I will also continue to check your webpage.
Thanks for the great job you are doing. Remmember alot of people are relying on your information I hope you keep to the facts.
From: CaseyEarl2@aol.com 11/10/97
I am a college student suffering from psoriasis. Not only is it an eye-sore to my friends, but other students look and talk about me during class. I tried skin cap last winter and it worked wonders on my skin. I tried to re-order this summer but found out that I could no longer get any. My psoriasis cleared completly up while I used skin cap, but now I have it again. If there is another way to get skin cap please let me know.
From: Marilyn Giardini <firstname.lastname@example.org> 11/8/97
I have had psoriasis for over 30 years since I was 18. Like so many of us, I have use light treatments, creams and ointments and many of these products have steriods in them as they claim Skip Cap has. So what is the big deal that the FDA has with this product taking it off the market? Sounds political to me doesn't it? If the people on the FDA council and their families had it, especially their children you can bet it would have never been taken off the market in the first place!
If it takes a prescription from your doctor, then let get thru the red tape FDA and get it back on the market!!!
From: Norm and Brenda Kujawa <NKujawa@aol.com> 11/6/97
Please add us to your list of people looking for Skin-Cap. This is unbelievable. We just found out about the FDA problem when we went to reorder. Our daughter's condition improved miraculously with use of Skin-Cap. This product needs to get back on the market. We'll be contacting our congressperson. Thank you. Let us know if more info comes out.
From: Kathy <sacXXXXX@saclink.csus.edu> 11/6/97
I just found out that Skin Cap is no longer available. I am also new to the internet. But after finding out it was no longer available I decided to go on the net to see what I could find out about Psoriasis. I am a licensed Pharmacy Technician and am informed on the latest presciption treatments. None of which has worked for me. I've used the new ointment "Tazorac" which is very expensive with no results. It costs over $200.00 for a 100gm tube! Fortunately in my postion I don't have to pay for it. But either way it doesn't work for me. I was just amazed when I went on the net and saw your web page for "skin-cap". I am just amazed how many people used it and how many people responded. The product was simply a miracle. I had just mailed my check for 4 cans on 11/2/97 and found out 2 days later it was no longer available. So I am having to play catch up with all your other listeners. I have never even responded to anything on the net before but this is something I truely believe in. Nova Medical in Florida said that once they receive my check they will call me and see if I would like to substitute my order with their replacement product. But after reading some responses from people who've used the replacement products I think I'll just ask for my check back. Thanks for the info. because I really don't need more useless products in my medicine chest. I'm so glad that I found this web page because I will be back to keep up on the latest info you have.
From: Michael Lee Yohe <email@example.com> 11/5/97
Amazingly enough, your philosophy on Skin Cap is best applied to the rationale of cigarettes. True, cigarettes have cancer causing agents and have proved time and time again that those cancer causing agents have drastic results - but hey, cigarettes make me calm down and make me fill better. This rationale is deadly and irresponsible.
Your judgment on Skin Cap is very light and is mislead. The government is not going to prohibit the product because it contains steroids. However it _will_ prohibit the product as an OTC (over the counter) drug because it contains a _high level_ amount of steroids that requires a prescription.
I'm sure of the few people that you talked to about Skin Cap and how it works are just that - few. However, if you do your research on clobetasol proprionate it massively affects the "fight-or-flight" feature built into the immune system.
Have you ever talked to a one-year or two-year Skin Cap "victim"? They're now on drugs to stimulate their adrenal system in order to have energy. If they were ever in a car-accident (or another dramatic situation) they could possibly die, not because of the accident, but because their bodies are undergoing shock that would normally be corrected provided the clobetasol proprionate was not tampering with the "fight-or-flight" feature.
The long term of effects of Skin Cap are horrid. Being a psoriasis patient and former user of Skin Cap, I have seen with my own eyes on my own body as well as other people who have used Skin Cap for an extended period of time the malign effects that the drug can cause. Your "save-the-skin-cap" campaign is only enforcing the philosophy that is destroying the lives of Americans everyday - "if it feels good, do it."
From: BKOPATZ 11/4/97
I like many psoriasis sufferers have tried many, many medications, only to find one product that works. I, like many that have psoriasis have found that SKIN CAP is the only medication to help relieve the itching, and scaling associated with psoriasis. I am currently taking PUVA treatments, which only help to contain my condition. I have used many ointments, creams, and lotions that only stain my clothes and bed sheets. I have also used many other harmful drugs that can cause such things as cancer. These medications include light treatments and also methotrexate. I for one, am willing to risk any side affects that SKIN CAP may cause, because it is the one and only thing that has made my skin clear up. I heard about SKIN CAP from my dermatologist and he said any side affects are well worth the risk for me when it is the only thing that seems to do any good in my case. He has told me to get it if at all possible, as long as I could do so legally, and at a price that is reasonable. Before using SKIN CAP i was affected at about 80% of my entire body, now after using just a can I am now only about 20% affected. Thank you for providing this outlet to psoriasis sufferers and I hope this letter only helps in the fight to save SKIN CAP!!!!!!!!! A 10 year psoriasis sufferer
From: Anoynmous 11/4/97
I'm a NPF member and the first time I see anything about SC is in the lastest publication, warning about the product. My trust in NPF to be open to members on new treatments, have robbed me of even trying this product. Al the testimonials clearly state that it a breakthrough. I'm a sufrer for 20 years and tried anything, lately giving up on them all. Please let me know if there is a new supplier. Please keep this e-mail & my identity anonymous. I also think that we should abandon NPF and setup our own mailing list. Thanx for the help.
From: Danilo AGRELLI <firstname.lastname@example.org> 5 Nov 1997
I'm a 38 years old man from Milano, Italy.
I have used skin cap and it cleared up my psoriasis except from the palms of my hands where psoriasis is still present in small areas.
I went to Spain in September and found out that it had been taken out of the market but no one could tell me why. (By the way, the cost there was about 2,600 pesetas while in Italy it costed the equivalent of 6,300 pesetas !!!!)
My message to the people of FDA, Glaxo, local psoriasis foundations, local governments is: give me back SKIN CAP !
From: von <email@example.com> 11/3/97
My boyfriend has suffered from psoriasis for two years, his brothers each at least five years, and their father, when he died, was cracked, bleeding and flaking from every conceivable part of his body. Skin-Cap cleared up all three brothers' psoriasis within two weeks. Then, it was suddenly withdrawn from the market (as you well and painfully know), and the flare-up my boyfriend had from the sudden withdrawal was IMMENSE ! It appears on his genitals for the first time ever, so painful that even going to the washroom reduced him to tears; his elbows cracked so badly that he could barely work; and of course, ignorant losers started asking him if he had AIDS. We've been writing letters here, and I've been talking to (well, yelling at) plenty of people over the phone. The only thing I can say is, the squeaky wheel gets the grease. Keep writing and calling and annoying as many people as you can. Even if it doesn't bring back Skin-Cap, it is amazing how mentally therapeutic it is to yell at a government idiot.
Good luck to everybody on their quest for this Holy Grail.
From: Meaden & Moore <firstname.lastname@example.org> 11/3/97
For more than 10 years I have suffered from psoriasis in varying degrees from mildly annoying to extremely painful and bleeding.
I have tried all kinds of topical treatments, including Temovate, and while most gave me some relief, none ever cleared it up. Until Skin-Cap.
Last Spring, my psoriasis had gotten so bad that I was looking forward to a summer in long-sleeved shirts and pants and no swimming. My mother's dermatologist (he cleared hers up with Methotrexate) told her about Skin-Cap and she passed the information to me. While it sounded too good to be true, it was worth a try.
Within ONE WEEK my psoriasis was completely gone. No scars, no signs that I had ever had psoriasis. And it stayed gone all summer. Around September I started developing new lesions and was running low on Skin-Cap. I call Great Lakes Pharmeceutical to stock up for the winter, which is a traditionally painful season for me. I was devistated when no one answered the phones and then I saw the news on the Internet that has put me into deep despair.
This is the greatest treatment ever invented. I don't care if it has ACID in it. I just want some more. Please let me know what I can do to help this cause.
From: amcal <email@example.com> 11/2/97
I agree that Skin Cap is a remrkable product that works! In the US, you know the free world, everything revolves around money. Follow the money trail! That is why we can no longer buy Skin Cap in the US. The FDA message stated that if you stop using Skin Cap that your condition could worsen. Well in my case that was the one thing in their message that was true. My condition has and now I am in a panic. Hell, I am buying products right and left just to try to control my flare-ups. I have found one product that seems to be working but not as quick as Skin Cap that I will continue to use until Skin Cap is available again, if it ever will be! One distributor that used to sell Skin Cap felt that it could be back in the US in a few months but not as an OTC product as before. See what I mean, "Follow the Money Trail." Skin Cap users should ban together and sue the hell out of the FDA for violations of our right to choose, if that would be possible!
From: NovaMech@aol.com - 10/30/97
I am 23 years old and I have had psoraisis for the last 6 years. My first flare up was a gutate ("gumdrop" patch) type of psoraisis over my entire body. After numerous visits to my dermatologist, which included steroid injections, as well as applications of Lidex gel, Dovonex ointment, and a variety of other presciption and OTC medications, my condition gradually improved - until I stopped using the medication.
I had lost all hope of defeating this disease and reclaiming an ordinary life, until one day I read a newspaper ad for a revolutionary new product guaranteed to clear up psoriasis quickly and without the risk associated with corticosteriods. Both desperate and admittedly skeptical at first, I ordered a can of the skincap spray. The skincap products have far surpassed my expectations and have been my salvation. Not only have patches of psoraisis that no other single treatment remotely provided any relief from disappear quickly, and in most cases permanently, upon application on skincap, I have also experienced NO negative side effects from its use.
I encourage the FDA to approve skincap as an effective and safe treatment for this skin disorder suffered by over 6 million Americans such as myself, even if skincap is only made available via presciption. No other product I have ever used has produced the level of results provided by skincap products in restoring the quality of life and controlling this devastating disease.
From: Joan <firstname.lastname@example.org> -- 10/30/97
Thanks for all the info on SKIN CAP. I am also a psoriasis sufferer and have been for over 20 years. You name it, I've tried it. I was devastated when I found out I couldn't get SKIN CAP any longer. The first relief I've had in my entire life vanished before my eyes.
I live in Canada and SKIN CAP has been pulled off the shelves here as well. What I don't understand is why the product can't be made available to those who want it (in a prescription form of course)? I will be calling the numbers listed on your web page and will keep you informed.
In the meantime, I'm looking for skin cap spray. If anyone has some for sale, I'm interested. Getting it across the border into Canada is another issue.
From: email@example.com -- 10/28/97
I was fortunate to get a can of Skin Cap and found it to be the most usefull treatment that I've ever used for my psoriasis condition.
I've read the entries in the "Home Page" and I think that the letter from Glaxo Welcome marketting manager to the Phamacists is the lowest form of marketting I've seen. I now know which labels to avoid when shopping for drugs in future.
From: "Allen Basa" <firstname.lastname@example.org> 10/27/97
I have been suffering from psoiasis for about 10 years now; I am 20 years old. When I was a child, I only had a couple of patches of psoriasis. Recently however (last 3 or 4 years), the psoriasis has spread a lot. I have not been able to stop or even slow its growth. One day I decided to look on the internet for any answers, when suddenly I saw this thing called skin cap. I was reading all of the results from those extreme sufferers, and was amazed. I was looking forward to purchasing some, but now I found out that it isn't even available anymore. I will pay almost anything to get rid of this skin disorder. So can you please add me to the list, and point me to the most affordable source. I live in Calgary, Alberta, Canada. Thanks a lot!
From: Geoffrey Wildman <GeoffreyWildman@pulseeng.com> 10/22/97
First let me say thank you for taking the time to get a page together for all of us who are searching desperately for the skin cap products. I only recently found out about the product and tried a single can. Boy was i amazed at how well this stuff works! I've heard all the doctor speak i can stomach about how we have to live with this skin afliction forever. HOGWASH! This stuff really works, and I'm not going to let a pharmaceutical conspiracy take what works away from me.
Like everyone I've ever talked with, that has psoriasis, I'm tired of "greasing" myself up several times a day. This stuff works, and I want to do whatever I can to make it available for everyone to use. Most of us are adults and are capable of making medical decisions for ourselves. WE're the one who have to live with the stares, not the beuracrats in Washington! LET THOSE WHO SUFFER DECIDE!
From: Carl Samrock <email@example.com> - 10/22/97
At last. Some reasonable communication about a very unreasonable situation. Unless I'M missing something, everybody else seems to be missing some important points. Does the FDA and Glaxo allege that Skin Cap contains the same amount or less steroids than Temovate? If the answer is the same amount or less (or more for that matter), then why can't the FDA simply clear the usage of Skin Cap?
THE most important point is that you use 18,000,000 times less of Skin Cap than you do of Temovate.
I've schmeared Temovate daily on my ecsema spots. It provides some relief but nowhere near the effectiveness of a quick schpritz (schmear and schpritz are medical terms, I want you to know) of Skin Cap, of which I am an ardent admirer like all your other letter writers.
I am using up the one can I have (it's taking forever, fortunately, because, I repeat, I use very little very effectively). But when I run out I'm doomed, thanks to your letters regarding the substitutes, because those look like a big fakeout.
Why isn't this being resolved in a timely fashion? There is no question the whole thing is a business/political strategy, whatever you want to call it, on the part of Glaxo.
If the FDA would simply regulate this product, steroids or no, there would be relief for thousands of people who are far worse off than I am (I know one in particular, a little boy, who suffers terribly).
Thanks for your continued information.
From: Mike Newman -- 10/22/97
I've been a Psoriasis sufferer for about ten years and as you mentioned in previous articles I''ve tried all the different creams and sprays out there. Even the sun tan booth for weeks on end. Nothing seemed to have any success. Then I tried some Skin Cap and within days I saw improvement and within 2 weeks I was almost completely cleared up. Then when I tried to re-order I was shocked to find out that it was turned down by the FDA. By the way I have Psoriasis on about 40% of my body so you know the discomfort and embarresment it causes. Any reliable sources to order would be greatly appreciated.
From: Tracy - 10/22/97
As with all of the other skin-cap users who have written you letters, my husband has seen dramatic results in usin skin-cap on his psoriasis. It is the only product that he has found that works and we are very disappointed with the FDA ban. Our concern at this point is that we are visiting a cousin in Mexico in the near future and have asked her if the skin-cap is accessible where she lives. It is no problem for her to order in quite a bit of it, which is wonderful news for us, but in reading about the FDA ban, it says that the border crossings have been alerted about skin-cap. How tricky would it be to bring small or large quantities of this back into the US? Will they be checking for this? Any advice on this matter would be appreciated!
From: "Ms. Philomena Jones" <firstname.lastname@example.org> - 10/22/97
These skin disorders have such potential for interfering with a person's emotional, social, and physical and mental life. I agree that Cheminova must be responsible to report the contentents of their product accurately. I think, though about the Hippocratic admonition to "first, do no harm," and see that on this one the pendulum swings both ways. While I see nobody on the site reporting personal experience of serious side effects (self included), think of the collective suffering as their symptoms recur in those whom Glaxo and the FDA have affected. I guess pharmaceutical executives don't take the Hippocratic Oath.
From: Kevin Cabral <email@example.com> - 10/22/97
What a shock it was to find out that skin-cap is no longer available, this was just as big a shock to me as when I first started using skin-cap and realized that there was something that worked. My skin had cleared up and remained clear for weeks without using skin-cap. I would only use it when I had a flare-up. This was something I felt good about and could live with this was in my opinion the next best thing to a cure. It is my contention that a cure does exist but there is more money to be made by the huge profit driven pharmaceutical companies to just keep selling expensive creams as a band-aid approach so you keep coming back. If they are going to make money off the western medicine system of just selling band-aids now wonder they are afraid of a product like skin-cap. Why, because it works and with it around who needs the rest of the creams and ointments. Steroids or no steroids let it be available so people can make there own choice. Cigarettes can kill you yet there still sold. Alcohol can kill you and its still sold and I could go on and on. We don't have Skin-cap because it will hurt the Big Money Company not because it might hurt the user. Lastly, I want to comment on how great your web-site is.
From: "Hofkirchner Hubertus J." <HofkirchnerH@ca-ib.com> - 10/22/97
I have been a user of skincap spray for 7 years, no problems ever. I came across the spray in Spain through an ad showing a very red inflamed condition similar to what I had been suffering with increasing seriousness since being 18 for more than 10 years. Neurodermatitis first on wrists, inner ellbows, forearms, some psoriasis in the hair, later on eyelids, fingers, outside of hand, inside the knee. At the time, nothing worked, fattening creams, rays, I had even used cortisone Intensively several times and the condition always returned within two to three weeks. Using skincap spray, within one or two weeks I was better than I'had ever been, after two months I realised I did not need to spray anymore, the condition was gone for several months. In the last 6 3/4 of these years I only had to use the spray once every couple of months for a week or so to get rid of new patches. Only ONCE I experienced problems: In year two or so I ordered new cans, which simply did not do anything to help. I called and was told that was a "failed" batch , I received a good batch without paying again. Since then every spray ordered has worked.
From: "Rolokom" <firstname.lastname@example.org> - 10/22/97
My name is Sergey. Don't be surprised that I'm writing to you from an ex-USSR republic of Estonia. It's a WORLD WIDE Web, and psoriasis is also world wide. I really appreciate what and how you have done to save skin cap. I myself suffer psoriasis since I was 18, that is half of my life. First, when I was young and, so to say, fresh to the illness, I took various treatments, ointments, ultra-violet and baths. But very soon I started realizing it was all in vain. My only hope was that in the future new and more effective medicines would be discovered. I learned to live with psoriasis, and you know what that kind of life means. For example, not to frighten a barber, I always had my hair cut by my relatives. I did not go to the doctors, but tried various medicines which appeared from time to time. I tried many, from old Soviet to newer, imported from Britain, Sweden or Denmark, and all in vain. Some 2 years ago I read about another new medicine Skin-Cap in a newspaper while I stayed with my parents in St Petersburg (Leningrad). I decided to try it though it was costly, because I was already tired of psoriasis, and because I felt more and more uncomfortable about the thoughts which my wife and children should have when they see me naked. Without really much believing in the success, I applied skin cap spray, and it worked, and - it was so miraculous! And T-shirts and beaches became available for me! I felt as if I were freed from a long term imprisonment of some kind.
But recently my Pointcast brought me information that this miraculous medicine had been withdrawn from sale in the USA because of some "side effects". I have not had any side effects myself (except the feeling of restored self-confidence), but I was worried and started searching the Internet for further details. That's how I found your site (which by itself is perfect in all aspects). I was stunned to learn how many people felt similar to what I felt after Skin Cap. Truly speaking I have never before had a chance to discuss the illness with co-sufferers. What's more, I understood that it's up for us now to say our word and let it be heard.
First of all I want to say that I learned about the Skin Cap from an article, not a commercial ad. The article was written, I remember it very well, by a leading physician of a dermatologist hospital in St Petersburg. He wrote that Skin Cap was offered for them for testing, and they carried out a series of tests about its effects. He never mentioned that they discovered "side effects" during their tests, but warned the medicine contained corticosteroids (I still don't know what it is). If this can help, I could try and find the article with the name of the physician and his hospital during my planned trip to St Petersburg in December. We then would be able to apply to them with a request for information if they observed harmful side effects for their patients. I don't want to say now that they proved Skin Cap was safe (any medicine could be dangerous if overdozed), but they tested it on patients and recommended it for sale in Russia.
Another thing which seemed important to me after visiting your site. I heard that about 3% of the world's population suffer from psoriasis. It's a huge amount. I wonder if you in America have already got any kind of organization to help protect your rights and interests. Maybe, time came to start a specific international movement, or an NGO, to jointly solve problems which we all face? You struggle against the ban on selling Skin Cap, we here in Estonia as well as in many other countries do not have it on sale at all. But I don't mean only Skin Cap, but all the medical and social problems. By all means our voice would be better heard if we are united, like the movement against the land antipersonnel mines.
From: Debbie Nutz -- 10/21/97
Thanks so much for your page!!!! I have had psoriasis for 15 years. Skin cap is the only thing that works.
For those of you looking for skin cap, I was able to find a coulple of cans by calling my local pharmacies. Not all of them have heard that it is recalled. I was sure not going to tell them.
My question is does anyone know if the shampoo helps when used with the spray?
From: "Izzie" <email@example.com> -- 21 Oct 1997
Please keep up the fight, we need the product. I have been suffering with psoriosis for 20 years, and this is the first time that I was able to go to the beach when everyone else was there!! I can not tell you the joy of walking around in short sleeves this summer. I forgot what that felt like. Or not to be embarassed in front of my wife and kids. FINALLY! something that works. We must get skincap back, ASAP. It can't possibly be any worse than any of the (expensive & usless) crap that the pharmacutical world is flooding the market with. Thanx once again, and good luck.
From: Doug Binkley <firstname.lastname@example.org> -- 10/21/97
You are doing such a good thing, that I must thank you from the bottom of my heart. My story is similar to the others in the testimonials, but I suffered for only about 5 years. Now only time will tell if the suffering will come back, horrible red welts that made my life a living hell because of the pain every time I would walk, bend, sit, or even shift my weight.
I cannot believe even our government is so shortsighted. I, myself, am willing, if the injustice continues long enough, to send letters, emails, whatever it takes, to make things uncomfortable for the FDA and the politicians, including the President and Vice- President. Please keep your site going. You are someone of great courage and integrity.
From: email@example.com -- 10/20/97
My dad has very severe psoriasis.. he is really desparate, I have p as well, but on a much smaller scale. I would really like to get my hands on skin cap. At this point, (my dad is 66) he would rather take the chance with the steroids and their side effects than to live like this... There is not one inche of his body that is not covered.
From Carrie -- 10/20/97
I was desperate to find skin cap as well. I still would like to find it because it was the best!!! but I've recently started tazorac, and have to give it a while. Keep me posted, if this tazorac doesn't work, I'd love to get my hands on the cap.
PS. I ran out before even hearing about the FDA recall, so I had to go off cold turkey. My skin totally flaired. It is so bad now. I was actually in the ER today for what turns out to be an staph infection from an infected plaque on my scalp. My head throbbed and neck was sore, I thought I had menengitis!
From: Robin Howard <firstname.lastname@example.org> -- 10/20/97
As a psoriasis sufferer and one-time user of Skin Cap, I too am interested in returning Skin Cap to the US market but only if it is safe. Your website indicates that Skin Cap has returned to the market in the Netherlands. While Cheminova would like you to believe that, it is not true. In the interests of accuracy and balance, I suggest you include the attached fax which the Dutch authorities sent to the NPF in the pages of your Website.
From: Peter Mechlin <email@example.com> - 10/20/97
Suffering with psoriasis for almost 20 years UNTIL I stumbled across "Skin-Cap". The DOCTORS told me Oh Well! you have psoriasis and there is nothing that is successful in treating the condition. Again and again I was told this by doctors, again and again I tried AND PAID, AND PAID, FOR THEIR UNSUCCESSFUL PROFESSIONAL SERVICES PRESCRIBING UNSUCCESSFUL MEDICATIONS to mitigate the condition.
NOTHING WORKED UNTIL SKIN-CAP, IT WORKED! YOU (FDA)TOOK IT AWAY!!!! WHY AND HOW COULD YOU HAVE DONE SUCH A THING?
I had reduced my application of the medication to almost nothing and my skin was clear for the first time in over a decade. The thick pads of red scaly skin on my knees, calf and elbows was gone!!!!!!!! It took about 2 months for the miracle to occur, then it stayed gone for months with just an occasional, and I do mean occasional, application.
NOW I can't get the stuff! What the FDA has done is criminal, and should it prove that Skin-Cap is not guilty of its "crime", please contact me as a participant in the class action suit or any other such action related to punishing those organizations, companies or individuals that have colluded in taking away this EFFECTIVE remedy!
From: Djdcd@aol.com -- 10/20/97
I was taking tegison stopped when using skin cap. Sure didn't realize the side effects of Tegison but now sure do, loss of hair, dry skin mouth and lips and draining of the ears. Sure don't think skin cap can be any worse then the enternal drugs. Have also used mtx which gave me liver damage. Sure would like to get some skin cap because my skin is flaring and when it does i can count on 95% body coverage. So please put my name on the list.
From Pauline Mariany -- 10/20/97
Hi....I cannot tell you how wonderful your site is!!!!!!!!!!!! I am actually one of the nuts who has purchased Skin Cap from Herbs the Natural Alternative Center and yes they are charging $79.95 per can!!!! But my husband suffers and there is no amount of money I won't pay to see him smile.
About the supplier in Mexico. I did call them and they are not selling anything to people from the US at the moment. I was told they are out of stock and would resume selling when the FDA told them it was ok. It also took me 4 or 5 people before I could find someone who understood English well enough (I unfortunately do not speak Spanish). I gave them my telephone number and name and was told they would contact me when they could begin to sell the product again.
Just a note to help you update your readers.
I sure hope they get this straightened out soon......Skin Cap is the ONLY thing that has ever helped my husband and he is covered over about 60% of his body. With winter coming upon us I just could not wait for the FDA to get it right and so I'm paying the $80 per can.
Keep up the good work.
From: BJH432@aol.com -- 19 Oct 1997
Just found your site. Great info. Keep up the terrific work. Any ideas when the controversy started by these children is expected to be resolved?
Skin-Cap has been a MIRACLE for me and I'm taking steps to get more, by whatever means. 10 cans (over 2 months) kept me clear for 7-8 months. 100% clear.
Even if it does contain clobetasol, so what??? So does Temovate which I'm using now, AFTER PAYING THE DOC $40 AND $62 FOR TEMOVATE. *** GET REAL ***.
Sent a letter to the NPF after I found out about their involvement. You don't want to know the contents.
Now I got a tube of Temovate. Doesn't work good at all. Does Glaxo care? Ban those bastards.
Keep me informed on the latest, I'd appreciate it.
From Lew Cohen -- 19 Oct 1997
No you're not crazy. I am a long term psoriasis sufferer and found virtually perfect relief with skin cap and no help with anything else. In addition my skin is very sensitive to corticosteroids. I can attest to the fact that either there is no steroid in Skin Cap or that there is a "perfect" dosage that only seems to clear the skin without having any other effect. The clones don't work. Bring back Skin Cap!
Incidently, I'd be pleased to see Skin Cap available only as a prescription preparation. Then my health insurance company would help with the cost. Here's another case of the FDA hurting the people that it's supposed to protect. I can get methatrexate or PUVA for the asking but I can't get Skin Cap.
The opinions of this site are of a personal nature, and not to be understood as a medical advice. Consult a qualified doctor for
diagnosis and treatment of psoriasis.
We don't have any affiliation with the manufacturers of Skin Cap, and we don't sell any products. If you are interested in Skin Cap, you can find a few Skin Cap distributors on the Internet.